SARCOMA PATIENT
EDUCATION CONFERENCE
March 22, 2025 - Fred Hutch Cancer Center
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Fred Hutch Cancer Center hosted a free, virtual patient education for patients with Sarcoma and their caregivers, in partnership with the Northwest Sarcoma Foundation and SFA.
During the event, providers will talk about:
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Advancements in systemic therapies like chemotherapy, targeted therapy or immunotherapy for treating Sarcomas.
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How to read your pathology reports.
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Updates on surgery and radiation therapy for treating Sarcomas.
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Including integrative medicine in the treatment of Sarcomas. Integrative medicine includes services like nutrition, physical therapy, acupuncture, and more.
April 30, 2022 - Seattle Cancer Care Alliance
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The annual Patient Sarcoma Patient Education Conference brings together SCCA and Seattle Children's Hospital Sarcoma experts from multiple specialties to answer your questions and share information on the basics of Sarcoma.
Event Agenda
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Welcome & Introduction - 5 min.
Michael J. Wagner, MD, Seattle Cancer Care Alliance
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Introduction to Sarcoma: A Doctor's Perspective 30 min.
Michael J. Wagner, MD, Seattle Cancer Care Alliance
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Surgical Treatment of Sarcoma 40 min.
Matthew J. Thompson, MD, Seattle Cancer Care Alliance​
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Northwest Sarcoma Foundation 8 min.
Jo McNeal, Exec. Director​
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Sarcoma Foundation of America 8 min.
Dean Frohlich, PhD, Dir. of Scientific Affairs
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Physical Therapy for Patients with Sarcoma 30 min.
Courtney Bush, PT, DPT
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Comprehensive Fertility Care and Preservation for Patients Receiving Fertility Altering Interventions 40 min.
Tyler Ketterl, MD, MS, Seattle Children's Hospital
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Questions & Answers 10 min.
Everyone
October 16, 2021 - OHSU
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The annual Patient Sarcoma Patient Education Conference brings together OHSU sarcoma experts from multiple specialties to answer your questions and share information on the basics of sarcoma and research advances.
Event Agenda
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Welcome & Introduction 10:00 – 10:15 am
Lara Davis, MD (Sarcoma Oncologist)
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Ask a Sarcoma Doc 10:15-11:15 am Brook Farrell, BSN-Moderator (Nurse Navigator); Jessica Davis, MD (Sarcoma Pathologist); Lara Davis, MD (Sarcoma Oncologist); Yee-Cheen Doung, MD (Orthopedic Surgery); Blair Murphy, MD (Radiation Oncologist); Flavio Rocha, M.D., F.A.C.S., F.S.S.O. (Surgical Oncologist); Chris Ryan, MD (Medical Oncologist); Katrina Winses, MD (Pediatric Oncologist)
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Closing Remarks 11:15- 11:30 am
Cami Godsey, LCSW, MA-Oncology Social Worker -
Breakout Sessions 11:30-Noon
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Coping with Uncertainty Cami Godsey, LCSW, MA-Oncology Social Worker
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Interactive Excercise
Kimi Daniel, MS, ATC-Sr. Research Assistant -
Getting to Know Palliative Care
Asher Caldwell, MSN, ANP-BC, ACHPN-Nurse Practitioner
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ADDTIONAL RECORDED CONTENT
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Sarcoma Overview
Kenneth Gundle, MD -
What are Clinical Trials?
Lara Davis, MD -
Treatment Advances (2020 & 2021 versions)
Lara Davis, MD -
Radiation Therapy-What to Expect? Kristi Tonning, PhD, RT(T) & Maria Thompson, MS, RT(T)
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Palliative Care
Asher Caldwell, MSN, ANP-BC, ACHPN & Andrea Gepner, FNP -
Mindfulness-Based Stress Reduction Kimberly Carson, MPH, C-IAYT, E-RYT
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Chemo Brain and the Role of Speech Therapy
Haley Landau, MS, CCC-SLP -
THC, CBD, and Cancer Therapy
Joseph Bubalo, PharmD -
Exercise for Cancer Patients Shannon Austin, MS
May 15, 2021 - SCCA
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Presentations from the event:
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Introduction to Sarcoma: A Doctor’s Perspective
Michael J. Wagner, MD -
COVID-19 and Cancer
Elizabeth T. Loggers, MD, PhD -
Integrative Medicine and Oncology: Becoming your healthiest self
Kathleen Sanders, ARNP, MSN, MPH -
Advancements in Sarcoma: Clinical Trials and Research
Michael J. Wagner, MD
October 17, 2020 - OHSU
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The annual Patient Sarcoma Patient Education Conference brings together OHSU sarcoma experts from multiple specialties to answer your questions and share information on the basics of sarcoma and research advances.
Event Agenda
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Welcome & Introduction 10:00 – 10:05 am
Lara Davis, MD (Sarcoma Oncologist)
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The Patient Journey 10:05 – 10:35 am
Carrie D'Andrea, BSN, RN (Sarcoma Nurse Navigator); Iris Mushkin (Sarcoma RN Coordinator); KrisAnn Talarico, LCSW, OSW-C (Sarcoma Social Worker); Keegan McKenna (Patient); Preston Sleeger (Patient)
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Ask a Sarcoma Doc 10:35-11:05 am
Jessica Davis, MD (Sarcoma Pathologist); Kenneth Gundle, M.D. (Orthopedic Surgery Oncologist); Dale Han M.D., F.A.C.S. (Surgical Oncologist); Chris Ryan MD (Medical Oncologist); Katrina Winsnes, MD (Pediatric Oncologist)
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Exercise & Cancer 11:05-11:25 am
Shannon Austin, MS (Exercise Physiologist)
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Closing Remarks 11:25- 11:30 am
Lara Davis, MD
ADDTIONAL RECORDED CONTENT
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Sarcoma Overview
Kenneth Gundle, MD -
What are Clinical Trials?
Lara Davis, MD -
Treatment Advances
Lara Davis, MD -
Palliative Care
Asher Caldwell, ANP & Andrea Gepner, FNP -
Chemo Brain and the Role of Speech Therapy
Haley Landau, MS, CCC-SLP -
Exercise for Cancer Patients
Shannon Austin, MS -
THC, CBD, and Cancer Therapy
Joseph Bubalo, PharmD -
Mindfulness-Based Stress Reduction
Kimberly Carson, MPH, C-IAYT, E-RYT
The link above goes to a document that includes links and descriptions for relevant patient education related to radiation therapy treatment. Patients treated with radiation therapy undergo imaging before and during their treatment and often have questions about that (CBCT). Patients also often wonder what the treatment room and department may look like and can take a virtual tour with the OHSU Radiation Medicine 3-D Guided Tour. Finally, the Radiation Therapy Treatment Introduction has some great basic information. All three were developed in connection with a patient education project, and some have been disseminated to patients already.