top of page

NO ONE SHOULD FACE SARCOMA ALONE.

Our Mission: To provide hope, education, and support to anyone affected by Sarcoma in the Pacific Northwest while investing in research to improve cure rates for Sarcomas.

The Northwest Sarcoma Foundation seeks to ensure that everyone who faces Sarcoma in the Pacific Northwest has a care team behind them. Our resource and outreach programs reflect our values:

 

  • Compassion — Building a supportive and understanding Sarcoma community while providing comfort through our programs.

  • Advocacy — Promote Sarcoma awareness to support early diagnosis.

  • Responsibility — Funding regional and national Sarcoma research to drive advancements towards a cure.

  • Education — Connecting anyone affected by Sarcoma with accurate and reliable resources.

​

Through prevention education, survivorship, and treatment research, we are fighting to end the devastating impact Sarcoma has on our lives.

Dragon drawing, Dragonslayer

OUR STORY

The Northwest Sarcoma Foundation was founded on April 12, 1996, by Ernest U. Conrad, III, M.D. during his tenure at the University of Washington Medical Center. The foundation was started with a large financial gift from the McClary family after the loss of his beloved wife and mother of their small children. Through the help and support of others, 501(c)3 paperwork was filed, and we received our IRS determination letter in June 1997. 

Chappie-Conrad.webp

In 2000, the first fundraising event was held: the Hike, Bike, and Trike. In 2006, the foundation gets a new Executive Director. With guidance from the founder and board of directors, the Executive Director helped develop the foundation into what it is today. Under her tutelage, Help$ grants were developed, the Hike, Bike, and Trike events evolved into the Dragonslayer Walks, the Stories from the Vineyard, now the Hope Grows Here special events, were born, and we made our first investment into research.

 

As the 2008 crisis was gripping the US, the Northwest Sarcoma Foundation launched their Help$ Foundation grants for adults. In its inception year, the program provided 30 grants to patients across the PNW totaling $7,500 in Help$ grant support. By 2009, the number of grant requests doubled and the foundation quadrupled the amount given, which was a total of $31,500. Also, in 2009 the Westerholm family began a legacy in memory of their daughter, Jenna, who lost her battle to embryonal rhabdomyosarcoma. The Jenna Foundation Help$ grants were created in her memory; these grants provide for pediatric patients. Between these two grant programs, we now serve over 100 patients yearly, exceeding over $55,000.

 

In 2011, we made our first investment in Sarcoma research. Sarcoma treatment advancements have been made with the research grant support from the Northwest Sarcoma Foundation. Somewhere along the way, the Sarcoma Journal Club program advanced past the living room of Dr. Conrad to a larger opportunity to bring our PNW researchers and physicians together to network and discuss some of the latest research in Sarcoma.

 

As 2020 shut down the world, we took to heart the needs of the Sarcoma community who became quarantined in their homes along with everyone else. Through the brainstorming help and financial support of a donor who lost her husband to Sarcoma, the Care Package program was developed and launched in 2021. We started the virtual Researcher Update Nights, allowing Sarcoma researchers to share their knowledge and experience with our supporters, who then are able to ask questions about how research is developing. We were also able to launch the virtual Casual Chat program to support patients and survivors, caregivers, and those who have had someone pass away from Sarcoma. We are looking forward to our next historical advancements for the Northwest Sarcoma Foundation. We encourage you to be a part of our history.

 

The foundation serves anyone affected by Sarcoma in the Pacific Northwest, which includes the states of Alaska, Idaho, Montana, Oregon, and Washington. However, we have virtual programs which have a broader reach across the globe. The foundation was established to be a place of support and education for those who are living with Sarcoma or other rare bone tumor disease. In addition, the site is intended to offer support to friends, family, and caregivers. Because the information on this site is provided for educational purposes only, nothing found here is intended to replace medical advice. A physician should always be consulted about medical and health-related issues.

​

 

Any reference to other resources made by the Northwest Sarcoma Foundation is not an endorsement of any individual, agency, or organization. Northwest Sarcoma Foundation may not necessarily agree with all information provided on other websites but has found some value may exist for patients and family members.

Nondiscrimination Statement
Northwest Sarcoma Foundation does not and shall not discriminate on the basis of race, color, religion, gender, age, national origin, disability, marital status, sexual orientation, or military status in any of its activities or operations. These activities include, but are not limited to, hiring and firing of staff, selection of volunteers and vendors, and provision of services. We are committed to providing an inclusive and welcoming environment for all members of our staff, volunteers, contractors, vendors, and those we serve.
 
Transparency Statement
We strive to earn your trust.  We are committed to the values and expectations of a community foundation, which include honesty, consistency, and accountability.  To promote these values, we work with partners such as GuideStar to provide current financials and audit reports so that prospective supporters have the information they need to make an informed decision.

Privacy Policy
The NW Sarcoma Foundation is committed to protecting the privacy and security of your personal information. This Privacy Policy explains how we collect, use, share, and protect information when you interact with us, including through our website, social media platforms, events, and any other services we provide.

1. Information We Collect

We collect various types of information provided by the donor to better serve our mission and community. The types of personal information we may collect through donations and registrations include:

  • Contact Information: Name, address, phone number, email address.

  • Donation Information: Transaction details, donation amounts, and payment methods (we do not store payment details).

  • Event Registration Information: Details related to participation in events, including dietary preferences, accessibility needs, and other relevant data.

  • Communications: Feedback, survey responses, or any correspondence with us.

  • Volunteer Information: If you sign up to volunteer, we may collect information relevant to your role, including availability, skills, and interests.

  • Technical Data: IP address, browser type, device information, and website usage statistics collected via cookies and other tracking technologies.

2. How We Use Your Information

We use the information we collect to:

  • Process donations and provide donation receipts.

  • Communicate with you about events, programs, and updates relevant to our mission.

  • Organize and manage participation in events, including volunteer activities.

  • Improve our services, website, and outreach efforts.

  • Comply with legal obligations, including financial and tax reporting.

3. How We Share Your Information

We do not sell, rent, or trade your personal information. Most importantly, we do not share your opt-in/out information with anyone, outside of the NWSF. However, we may share your information in the following circumstances:

  • Service Providers: With trusted third-party vendors who assist us in delivering our services (e.g., payment processors, event management systems). These providers are required to keep your information confidential and secure.

  • Legal Requirements: When required by law or to protect the rights, property, or safety of [Nonprofit Organization Name], our community, or others.

  • Consent: When you provide explicit consent for sharing your information.

4. How We Protect Your Information

We implement a variety of security measures to protect your personal information, including secure servers, encryption of sensitive information, and restricted access to personal data. However, no method of transmission over the Internet or electronic storage is 100% secure, so we cannot guarantee absolute security.

5. Your Rights

You have the right to:

  • Access and review the personal information we hold about you.

  • Request corrections to any inaccurate or incomplete information.

  • Opt-out of receiving promotional communications by following the unsubscribe link in emails, on the registration sites, or by contacting us directly.

  • Request that we delete your personal information, except when we are required to retain it for legal or operational reasons.

6. Children's Privacy

We do not knowingly collect personal information from children under 13 without parental consent. If we learn that we have collected such information, we will take steps to delete it.

7. Changes to This Privacy Policy

We may update this Privacy Policy from time to time. Any changes will be posted on our website, and the effective date will be updated. We encourage you to review this policy periodically for any updates.

8. Contact Us

If you have any questions or concerns about this Privacy Policy or how your information is handled, please contact us at:

Northwest Sarcoma Foundation
117 E. Louisa St, #443 Seattle, WA 98102
info@nwsarcoma.org | 206.257.7215

By interacting with the NW Sarcoma Foundation, you agree to the terms of this Privacy Policy. Thank you for supporting our mission!

bottom of page