Question 1

Research and Clinical Trials

Accepted Answer

ClinicalTrials.gov
Clinical studies in Oregon 
https://clinicaltrials.gov/ct2/results?cond=Sarcoma&term=&cntry=US&state=US%3AOR&city=&dist=(https://clinicaltrials.gov/ct2/results?cond=Sarcoma&term=&cntry=US&state=US%3AOR&city=&dist=)
​
Clinical studies in Washington 
https://clinicaltrials.gov/ct2/results?cond=sarcoma&term=&cntry=US&state=US%3AWA&city=&dist=(https://clinicaltrials.gov/ct2/results?cond=sarcoma&term=&cntry=US&state=US%3AWA&city=&dist=)
 
Cancer Research Institute
Immunotherapy clinical trial finder
https://www.cancerresearch.org/patients/clinical-trials?utm_source=luminate&utm_medium=email&utm_campaign=oth-welcome-3(https://www.cancerresearch.org/patients/clinical-trials?utm_source=luminate&utm_medium=email&utm_campaign=oth-welcome-3)
 
Sarcoma UK
Impact of Sarcoma: National Sarcoma Survey 2020
https://sarcoma.org.uk/impact-sarcoma-national-sarcoma-survey-2020-full-technical-report(https://sarcoma.org.uk/impact-sarcoma-national-sarcoma-survey-2020-full-technical-report)
 
Academia
Sarcoma research papers
https://www.academia.edu/(https://www.academia.edu/)
 
Seattle Children's
T-Cell Immunotherapy for Solid Tumors (STRIvE)
https://www.seattlechildrens.org/clinics/cancer/research-and-clinical-trials/t-cell-therapy-for-solid-tumors/(https://www.seattlechildrens.org/clinics/cancer/research-and-clinical-trials/t-cell-therapy-for-solid-tumors/)
 
T-Cell Immunotherapy for Cancer
https://www.seattlechildrens.org/clinics/cancer/research-and-clinical-trials/t-cell-therapy/(https://www.seattlechildrens.org/clinics/cancer/research-and-clinical-trials/t-cell-therapy/)

Question 2

Financial Support

Accepted Answer

Allyson Whitney Foundation (https://www.allysonwhitney.org/ )
Young adult patient funding for rare cancers

American Cancer Society
ACS has a few programs to assist with travel costs, housing, etc. during treatment. Please contact ACS: 1-800-227-2345

Arielle Anacker Cancer Foundation (https://www.arielleanackercf.org/whatwedo/)
Pediatric financial assistance.

Byrd Barr (https://byrdbarrplace.org/programs-services/energy-assistance/)- Seattle, WA
Energy assistance programs support households with low incomes pay energy bills, refill oil tanks, repair or replace furnaces, and receive new air conditioning (A/C) units to keep your home a comfortable temperature and the lights on.
The Market resembles a grocery store where you can choose from displays stocked with healthy foods and non-grocery essentials. Please bring your own bags if you can.

Cancer Care (https://www.cancercare.org/financial?gad_source=1&gclid=CjwKCAjwv-2pBhB-EiwAtsQZFD4kL50dqLz9t_U9lH71GeQ_lpCki5Zbs-9wx_SiLD17nY4q5lyGDxoCao0QAvD_BwE)
May have grants available and additional list of organizations who may provide finanical assitance for anyone facing cancer.

Kylee's Dancing Angels(http://www.kyleesdancingangels.org/find-your-happy-place/)
Provides grants to Sarcoma patients who need financial support to find their "happy place".

Lazarex Cancer Foundation (https://lazarex.org/helping-you/patient-assistance-forms/ )
Patient clinical trails travel funding

Live Like Bella Childhood Cancer Foundation (https://livelikebella.org/applying-for-support/)
Provides pediatric financial assistance for children undergoing cancer treatment. They also provide support and financial assistance for memorials.

More Moments More Memories Foundation (https://moremomentsmorememories.org/our-grants/)
Provides financial assistance for a patient and their caregiver for travel, lodging, and food when receiving treatment during a clinical trial.

National Cancer Institute (https://www.cancer.gov/about-cancer/managing-care/track-care-costs)
Assistance in understanding and managing cancer expense.

The Power of Will (https://thepowerofwill.org/quality-of-life-grants/ )
Quality of Life grants for ages 15 - 39

The Samfund (https://expectmiraclesfoundation.org/samfund/)
Provides grants to young adult cancer survivors (ages 21 - 39) to help cover the expense of post-treatment financial needs. Grant application's are accepted in the spring and fall.

Sarcoma Foundation of America (https://www.curesarcoma.org/sarcoma-resources-patient-resources-jordans-dream-fund/)
Clinical Trials out-of-pocket or travel expense grants

Sarcoma Alliance (https://sarcomaalliance.org/second-opinion-grants/ )
Second opinion grants

Team Maggie (https://www.teammaggiesdream.org/)
Financial support for fertility preservation.

The Andrew McDounough B+ Foundation (https://www.bepositive.org/need-help)
Provides pediatric financial assitance to families going through cancer treatment.

United Health Care Children's Foundation (https://www.uhccf.org/apply-for-a-grant/apply-now/)
Provides assistance for children with medical expenses that are not covered by insurance.

Question 3

Travel & Lodging Support

Accepted Answer

Airbnb in Partnership with the Cancer Support Community
Free Housing for Patients Traveling for Cancer Treatment
https://www.cancersupportcommunity.org/airbnb(https://www.cancersupportcommunity.org/airbnb)
 
Joe’s House – reduced housing nationwide 
https://www.joeshouse.org/(https://www.joeshouse.org/)
 
Healthcare Hospitality Network, Inc
https://www.hhnetwork.org/(https://www.hhnetwork.org/)
 
Ronald McDonald House 
https://www.rmhc.org/our-core-programs/ronald-mcdonald-house-programs
(https://www.rmhc.org/our-core-programs/ronald-mcdonald-house-programs)
Sarcoma-Oma
Medical travel funding
http://www.ppgevents.com/sarcoma-oma.application (http://www.ppgevents.com/sarcoma-oma.application)

Angel Flight West
Urgent and non-emergent air medical-transportation services 12 western states.
https://www.AngelFlightWest.org (https://www.AngelFlightWest.org)

A Shelter for Cancer Families
http://www.cancerfamilies.org/(http://www.cancerfamilies.org/)
 
AOW – Airlines of the Web Medical Air Services
http://www.flyaow.com/airmed.htm(http://www.flyaow.com/airmed.htm)
 
Corporate Angel Network
https://www.corpangelnetwork.org/(https://www.corpangelnetwork.org/)
 
Patient AirLift Services
https://palservices.org/(https://palservices.org/)
 
Southwest Airlines Medical Transportation
https://www.southwest.com/html/southwest-difference/community-involvement/charities/medical_transportation.html#wa (https://www.southwest.com/html/southwest-difference/community-involvement/charities/medical_transportation.html#wa)
Use this link to determine if they partner with your medical treatment facility

Children's Flight of Hope
https://childrensflightofhope.org/request-process (https://childrensflightofhope.org/request-process)

Mercy Medical Angels
https://www.mercymedical.org/request-assistance (https://www.mercymedical.org/request-assistance)

Miracle Flights
https://miracleflights.org/request-a-flight (https://miracleflights.org/request-a-flight)

Cocktail & Caregivers - travel support for a caregiver during treatments for patients
https://cocktailsandcaregivers.org/keeping-caregivers-close (https://cocktailsandcaregivers.org/keeping-caregivers-close)

Question 4

Survivorship Care

Accepted Answer

National Comprehensive Cancer Network
Survivorship Care for Healthy Living and Survivorship Care for Cancer-Related Late and Long-Term Effects
https://www.nccn.org/patients/guidelines/cancers.aspx#survivorship (https://www.nccn.org/patients/guidelines/cancers.aspx#survivorship)

Epic Experience Beyond Cancer
Programs for Adult Cancer Thrivers
www.epicexperience.org (www.epicexperience.org)

Team Survivor
Programs for Adult Women Survivors
www.teamsurvivornw.org (www.teamsurvivornw.org)

Caring.com  
Guide on navigating cancer care for older adults
https://www.caring.com/resources/navigating-cancer-care-decisions-for-older-adults/ (https://www.caring.com/resources/navigating-cancer-care-decisions-for-older-adults/)

Question 5

Legal Support

Accepted Answer

Triage Cancer - provides individuals diagnosed with cancer, caregivers, and health care professionals with free one-on-one help in the areas of health insurance, disability insurance, employment, finances, medical decision-making, estate planning, and more. 
https://triagecancer.org/legal-and-financial-navigation-program (https://triagecancer.org/legal-and-financial-navigation-program)

Question 6

Webinars and Podcast

Accepted Answer

Sarcoma Foundation of America
Research Review: Promising Research Advancements in Sarcoma
https://www.curesarcoma.org/education/(https://www.curesarcoma.org/education/)
 
Sarcoma Podcast from Two Sarcoma Physicians
https://www.sarcomasisters.com/(https://www.sarcomasisters.com/)
 
National Comprehensive Cancer Network
Soft Tissue Sarcoma
https://www.nccn.org/patients/resources/soft-tissue-sarcoma.aspx(https://www.nccn.org/patients/resources/soft-tissue-sarcoma.aspx)

Question 7

Additional Support Group/Mentorship programs

Accepted Answer

Amputee Coalition of America
http://www.amputee-coalition.org(http://www.amputee-coalition.org)
 
Limb Preservation Foundation - Denver, CO (for ID and MT)
http://www.limbpreservation.org(http://www.limbpreservation.org)
 
Harmony Hill Healing Retreat - 3-day Cancer Retreat Center (Union, Washington)
www.harmonyhill.org (www.harmonyhill.org)

Imerman Angels
Peer-to-peer Cancer Support Program  
https://imermanangels.org/(https://imermanangels.org/)

SARCOMA EDUCATION

Casual Chat for Adult Patients and Survivors

Patient Education Webinars

Patient Education Conference

One-on-one Support

Personal Stories

Sarcoma FAQs

Sarcoma Research Updates

Online Sarcoma Community

ADDITIONAL RESOURCES

THANK YOU CORPORATE PARTNERS