©2019 by Northwest Sarcoma Foundation.

NO ONE SHOULD FACE SARCOMA ALONE.

Our Mission: To provide hope, education, and support to sarcoma patients and their families in the Pacific Northwest while investing in research to improve cure rates for sarcomas.

The Northwest Sarcoma Foundation seeks to ensure that everyone who faces sarcoma in the Pacific Northwest has a care team behind them. Our resource and outreach programs reflect our values:

 

  • Compassion — Provide comfort through a sympathetic awareness.

  • Advocacy — Promote accurate diagnosis, research and treatment options through our investment in research

  • Responsibility — Provide timely, accurate information and reliable resources.

  • Education — Provide educational materials for patients and families about this disease.

Through prevention education, survivorship, and treatment research, we are fighting to end the devastating impact sarcoma has on our lives.

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Haley's Story-


"At the end of July 2018, I woke up one morning with both my arms asleep—After I shook the numbness out, I was still left with a sharp “zinging” pain in the upper part of my right arm. I thought it was from sleeping on it funny and it would fade away if I shook my arms awake. The pain did fade a little, but then steadily ramped back up again several times over the next few months making it near impossible to reach my hands up to wash my hair in the shower.
On November 19th, 2018, biopsy results confirmed a high-grade Osteosarcoma and the whirlwind of treatment plans, doctor appointments, hospital stays, fertility preservation and chemotherapy ensued. My surgery ended up being quite remarkable and was called a “limb-salvage surgery with a free fibula flap”. That fancy name basically means I got to keep my arm and they rebuilt it using my right fibula from my leg. Once my incisions healed after surgery, we started chemo right back up again at full force. My oncologist said, “We do not stray from the plan. We forge ahead and throw the kitchen sink at this thing.” In August 2019, I completed treatment and found myself without a job and needing financial assistance for the first time in my life."


Haley is one of hundreds of patients who receive a financial assistance grant from NWSF each year.
Many patients lose their jobs, then their homes and sleep on the couch of family and friends so that they can complete treatment. Donate to NWSF today and help sarcoma patients get their life back on track.
Your contribution supports a sarcoma patient in treatment. Your donation of $1,000 covers the cost of 20 trips to treatment. Your contribution of $500 covers the cost of 10 trips to treatment.

Donate by December 20, 2019 to continue the NWSF grant program and support patients like Haley. Your generosity ensures that no one faces sarcoma alone.

OUR STORY

Northwest Sarcoma Foundation was founded in 1996 by Ernest U. Conrad, III, M.D.; Director of the Sarcoma Service, Vice-Chair of the Department of Orthopaedics and full professor at the University of Washington Medical Center. The Sarcoma Service was the first multi-disciplinary service established at the University of Washington (1986). The Sarcoma Service holds clinics for patients with sarcoma through Seattle Cancer Care Alliance. Northwest Sarcoma Foundation has grown to have representation in both Washington (Seattle Cancer Care Alliance) and Oregon (Knight Cancer Institute - Oregon Health & Science University) and beyond.

Northwest Sarcoma Foundation serves pediatric and adult patients and families who live in, or are being treated in, Washington, Oregon, Alaska, Montana and Idaho, otherwise known as the WAMI ("whami") region of the Pacific Northwest.

Northwest Sarcoma Foundation was established to be a place of support and education for those who are living with a sarcoma or other rare bone tumor disease. In addition, this site is intended to offer support to friends, family and care givers. Because the information on this site is provided for educational purposes only,  nothing found here is intended to replace medical advice. A physician should always be consulted about medical and health-related issues.

Each section pertaining to sarcoma and its treatment is designed to provide a basic or general overview  and provide links to more comprehensive resources. These other sites have demonstrated helpful information for patients and family members, and have been evaluated by a member of our staff.

Any reference to other resources made by Northwest Sarcoma Foundation is not an endorsement of any individual, agency or organization.  Northwest Sarcoma Foundation may not necessarily agree with all information provided on other web sites, but has found some value may exist for patients and family members.

Nondiscrimination Statement

Northwest Sarcoma Foundation does not and shall not discriminate on the basis of race, color, religion, gender, age, national origin, disability, marital status, sexual orientation, or military status in any of its activities or operations. These activities include, but are not limited to, hiring and firing of staff, selection of volunteers and vendors, and provision of services. We are committed to providing an inclusive and welcoming environment for all members of our staff, volunteers, contractors, vendors, and those we serve.


Transparency Statement

We strive to earn your trust.  We are committed to the values and expectations of a community foundation, which include honesty, consistency, and accountability.  To promote these values, we work with partners such as GuideStar to provide current financials, audit reports, and outcomes measurement statistics, so that prospective supporters have the information they need to make an informed decision.