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The information on this site is provided for educational purposes only. Nothing is intended to replace medical advice. Always consult with a physician about medical and health-related issues.
SUPPORT AND RESOURCES
ORPHAN DISEASES
Eurordis - An alliance of patient associations dedicated to rare diseases
NORD - National Organization for Rare Disorders, Inc.
Office of Rare Disease
Orphanet
Teradex - Rare Disorders
Below are categories of support or resources:
Advocacy
Children's Support
Orphan Diseases
Air Travel
Death / Dying / Grief
Quit Smoking
Amputation
Drug Assistance
Sarcoma Community
Cancer Information
Groups - Support Online
Search for Clinical Trials
Cancer Info - Children
Hospice
Second Opinions
Cancer Info - Bone
Hospitals
Survival
Cancer Info - Soft Tissue
Housing
Teen Support Sites
Caregiver Support
Medical Journals
Young Adult Support
Charitable & Financial
Confidentiality and Privacy Practices
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